Meet Charlie

In his first two years of life, Charlie was talkative and funny.  He loved to listen to books, watch construction equipment, and go to his preschool.  At age two and a half Charlie was diagnosed with a pediatric brain tumor called diffuse leptomeningeal glioneuronal tumor.  The tumor caused seizures, poor balance, and limited memory.  Despite these challenges Charlie inspired many with his smile, jokes, and caring.  When he saw someone get hurt or feel sad, he would immediately blow them kisses.  Charlie died at age 6 after spending more than half of his life enduring treatments for his tumor, none of which were effective. We need better treatments and tools for kids like Charlie.